Thursday, April 23, 2009

Preserving the Parents' Expertise

Part of a question from an interview I did recently has haunted me. It suggested that some might feel transition planning was letting go in the sense of giving up on an adult. I decided to chat with you in a video blog today about that. I am pasting the video below. Depending on what feed you are reading this post on it may not come through. If not, go to my video blog page here .

Until next time,

Peggy Lou Morgan
For a complete list of my sites see

Monday, April 6, 2009

Our Latest News 4/6/09

Hi Everyone:

There is a lot going on right now and I have wanted to touch bases with you for a while.

First, Billy Ray is somewhat the same as when I last posted. He still fights chronic pancreatitis but we are learning to anticipate pain and catch it as early as possible so he doesn't need the stronger medications for pain. The surgery (Nissan) done in September 2006 which sort of fixed his high degree of acid reflex was checked last week and still in place but he is getting reflux again and it is the cause of periodic choking episodes.

He has good news and bad on the service dog front. The present service dog is experiencing health problems of her own and will have to be replaced within the next year. I have ordered a Yellow Lab puppy which he will get at the end of summer and we will start training her to work with him.

Parenting an Adult with Disabilities or Special Needs seems to be getting pretty good reviews already. I am truly pleased by them. Here are two: Autism Learning Felt and .

Thanks to Amazon, I am able to combine the feeds for my blogs in one. If you'd like to read all the recent posts for this blog and Parenting a Complex Adult you can go to the Amazon blog and get them in one location.

Until next time,
Peggy Lou Morgan for a complete list of sites

Joe Steffy, a Success Story

The story of Joe Steffy, who experiences the combination diagnosis of Down syndrome and Autism, is small business owner (Poppin Joe's Kettle Korn). See the full story here .

It is the classic example of what parents working with their adult child can accomplish. The parents did not believe the school district's assessment that Joe would never be able to be independent. Together they ascertained a future that would work for him, set about writing a business plan and getting a small grant.

I was anxious to share these links with my readers because it will encourage us all relative to what is possible for our own children and adult children.

By the way, I have just added the feed for this blog and Parenting a Complex Special Needs Child to my Amazon Blog so that you can read both at the same there.

Until Next Time,

Peggy Lou Morgan

For list of sites see

Sunday, April 5, 2009

Your Adult Child's Pursuit of Happiness - Who Will Design

Everyone seems to have an opinion about what will make your son or daughter happy in adult life. Unfortunately, some of it is based on what is most prudent for programs not on person centered planning.

Whether he is high functioning and can learn to self advocate or needs a more involved advocate he has a right to be totally involved in choosing a future that will make him happiest. You can help him on the journey to pursue what will be a happy life but he needs to be as involved in those choices as possible.

If at all possible start taking your younger child to I.E.P.'s so she starts to learn advocating from you and to have as much understanding of oppportunities for the future as possible.

In Parenting an Adult with Disabilities or Special Needs, I have included some exercises you could try together to help him demonstrate interest in specific plans. Hopefully, it will be helpful in jumpstarting the conversations between you.

Until next time,
Peggy Lou Morgan
for a list of my sites see